Directory Listing(s)

Adult Congenital Heart Association Information, resources and support for adults with congenital heart disease. http://www.achaheart.org/

Canadian Adult Congenital Heart Network Provides information for patients and physicians about the care of adults with congenital heart problems. http://www.cachnet.org/

Congenital Heart Disease Information and Resources Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals. http://www.tchin.org

CongenitalHeartDefects.com Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, extensive list of support groups and hospitals. http://www.congenitalheartdefects.com

Heart Disease Online A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language. http://www.heartdiseaseonline.com

HLHS - Benjamin's Hope A personal site dedicated to a son, and his fight against HLHS, hypoplastic left heart syndrome. A place to find hope and strength. http://www.bensheart.com

Imperfect Hearts Includes interactive forums, Jara's story, and parent support. http://www.imperfecthearts.net

International Society for Adult Congenital Cardiac Disease The site offers resources for doctors and other health-care professionals in the field of ACHD and for ACHD patients. Visitors can search for ISACCD members. http://www.isaccd.org/

MedicineNet Detailed look at congenital heart disease, such as the causes, symptoms, types and treatments. http://www.about-heartdisease.com

Miami Children's Hospital Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments. http://www.pediatricheartsurgery.com

The Children's Heart Society Information about this non-profit, volunteer based support group, dedicated to helping families affected by Congenital Heart Disease/Defects. http://www.childrensheart.org/

Vivian Lemke's HLHS Story Hypoplastic Left Heart Syndrome (HLHS) information page and her life with her sisters in The Lemke Family. http://www.lemkefamily.com